EU-konsultasjon om europeiske nettverk av referansesentre knyttet til pasientrettighetsdirektivet


Public consultation on the implementation of European Reference Networks (ERN) under the framework of Article 12 of Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients' rights in cross-border healthcare.

Siste nytt

Åpen konsultasjon igangsatt av Kommisjonen 23.11.2012 (frist 24.1.2013)

Nærmere omtale

BAKGRUNN (fra konsultasjonsnettsiden, engelsk utgave)

The Directive on the application of patients' rights in cross-border healthcare (Directive 2011/24/EUpdf) requires the European Commission to support Member States in the development of European Reference Networks between healthcare providers and centres of expertise.

The main added value of the European Reference Networks and of the Centres of Excellence is to facilitate improvements in access to diagnosis and delivery of high-quality, accessible and cost-effective healthcare in the case of patients who have a medical condition requiring a particular concentration of expertise or resources, particularly in medical domains where expertise is rare (see Recital 54 of the Directive). European Reference Networks could also be focal points for medical training and research, information dissemination and evaluation, especially for rare diseases.

Article 12 requires the Commission to adopt a list of criteria that the networks must fulfil, and the conditions and criteria which providers wishing to join networks must fulfil. The Commission is also required to develop and publish criteria for establishing and evaluating European Reference Networks. And it must facilitate the exchange of information and expertise on the establishment of the networks and of their evaluation.

It is important to point out that the first step of this process is to identify already established centres of expertise and to encourage voluntary participation of healthcare providers in the future European Reference Networks.